GUARD was established in 2019 to:

  • Increase awareness of genetic, rare and undiagnosed diseases in Australia
  • Develop agreed position statements on matters that impact people living with genetic, rare and undiagnosed diseases in Australia to represent their views and for use in advocacy
    Collaborate to reduce duplication and ensure consistency of messages on matter of importance to the genetic, rare and undiagnosed disease communities in Australia
  • Develop and deliver activities in the relevant national documents, including the National Genomic Health Framework and the soon to be developed National Rare Disease Framework.

Meet the Team

Monica Ferrie


Genetic Support Network Victoria

Heather Renton


Syndromes Without a Name (SWAN)

Regan Leen

A/Executive Director

Genetic and Rare Disease Network

Jan Mumford

Executive Director

Genetic Alliance Australia