Committees

The GUARD Collaborative Australia is represented on the following groups/committees/boards/projects:

  • Asia Pacific Alliance of Rare Disease Organisations (APARDO) – Board Member
  • Australasian Institute for Digital Health – Precision Healthcare Steering Committee
  • Australian Genomics – Associate Investigator
  • Carrier Screening Reference Group – Member
  • Centre for Consumer Directed Research – Collaboration
  • Consumer Advisory Panel GI Cancer Institute
  • Consumer Health Forum – Member
  • Deakin University Faculty of Health – Consumer and Research Network member
  • Department of Health and Human Services, Victoria
  • Genomics Clinical Advisory Group – Victoria
  • Global Collaborative  Network 4 Rare Disease
  • Health Navigation Hub – Member
  • HGSA – Education, Ethics and Social Issues Committee
  • Human Genetics Society of Australasia – Member
  • InGeNA- Genomics Industry Genomics Alliance – Consumer Representative
  • Mackenzie’s Mission Engagement Reference Group – Chair
  • Melbourne Genomics Health Alliance Community Advisory Group
  • Mental Health Working Group – People living with genetic, undiagnosed and rare conditions
  • National Congenital Anomaly Advisory Group
  • National COVID-19 Clinical Guidelines Taskforce – Consumer Panel
  • Rare Disease International (RDI) – Member
  • Rare Voices Australia – Partner
  • RDNow Consumer Engagement Committee
  • Rehabilitation Psychology for Injury, Chronic Illness and Pain Interest Group – Collaboration
  • Research Australia – Member
  • Royal College of Pathologists Lay Committee (RCPA) Lay Committee
  • The George Institute – Join Us Research Register – Partner Organisation
  • UTS – Genetic Counselling Curriculum Advisory Group
  • Victorian Council of Social Services – Member
  • WHO Collaborative Global Network for Rare Diseases (CGN4RD) -Expert Panel Member
  • Women With Disabilities Victoria – Member