Contact us

Contact a Specific Organisaton

Genetic Alliance Australia

Genetic Alliance Australia facilitates support for those affected directly or indirectly by genetic conditions or rare diseases. Based in NSW.

Phone (02) 9295 8359


Genetic Support Network Victoria

The Genetic Support Network of Victoria plays an important role in supporting the Victorian genetics community so that they flourish. We work hard to help shape a health care system that incorporates the important genetic, rare disease and undiagnosed perspective.
We provide a consumer voice and advocating for people impacted by a genetic condition is only part of what we do. Empowering consumers to have control of their health and health care service choices, advocating for ‘whole of life, person centred’ health care policies and ensuring the ethical application of new and advanced genetic health technologies are high on our current list. As the Victorian peak support and representative body for the Victorian genetics community, we are on the ground working hard for our members and any person who seeks our assistance.

Phone (03) 8341 6315 


Syndromes Without a Name

Providing information and support to families caring for a child with an undiagnosed or rare genetic condition. Based in Victoria.

Phone 0404 280 441


Or Email Us @GUARD


50 Flemington Rd, Parkville VIC 3052


Genetic Alliance