Douglas Crawford


Clinical Nurse

Job Title Clinical Nurse Chronic Kidney Disease/ Fabry Nurse Coordinator
Organisation Name Royal Perth Hospital, WA
Areas of Special Interest

Disease process / interventions
Long term management of Fabry disease
Patient and family support

Adults or Children Adults
Clinic Services Quarterly Multidisciplinary team clinics:
* Genetic
* Psychiatry
* Neurology
* Pain
* Renal
* Cardiology
* @yourside nursing services
Clinic Contact details

T: (08) 9224 2170 or (08) 9224 2550

Clinic days/times First Friday, every 3 months:
* March
* June
* September
* December
Telehealth consults May be available
Transitional Planning – Paediatric to adult services Not available
Transitional Planning Information Not available as yet- it is something to consider as a formal pathway

Phone (08) 9224 2244

Douglas Crawford

is prepared to be contacted by other Health Professionals
Additional Clinical Information

Clinical Information
RACGP Clinical Challenge – Case 1 Fabry Disease
Pain in Fabry Disease: Practical Recommendations for Diagnosis and Treatment
Self-administered version of the Fabry-associated pain questionnaire for adult patients
Information for patients

What is Fabry disease?

European Reference Networks (ERNs)

European Reference Networks (ERNs)
ERNs are networks for clinicians and researchers to share expertise, knowledge and resources, this information may be of use to Australian health professionals and researchers.

For links to online portals that provide information on rare diseases including definitions, causes, treatments, and publications for patients, families and professionals in the field. Please see our conditions page.