Douglas Crawford

Profession	Clinical Nurse
Job Title	Clinical Nurse Chronic Kidney Disease/ Fabry Nurse Coordinator
Organisation Name	Royal Perth Hospital, WA
Areas of Special Interest	Disease process / interventions Long term management of Fabry disease Patient and family support
Adults or Children	Adults
Clinic Services	Quarterly Multidisciplinary team clinics: * Genetic * Psychiatry * Neurology * Pain * Renal * Cardiology * @yourside nursing services
Clinic Contact details	T: (08) 9224 2170 or (08) 9224 2550
Clinic days/times	First Friday, every 3 months: * March * June * September * December
Telehealth consults	May be available
Transitional Planning – Paediatric to adult services	Not available
Transitional Planning Information	Not available as yet- it is something to consider as a formal pathway

Email	douglas.crawford@health.wa.gov.au
Phone	(08) 9224 2244

Douglas Crawford

is prepared to be contacted by other Health Professionals

Additional Clinical Information

Clinical Information
RACGP Clinical Challenge – Case 1 Fabry Disease
Pain in Fabry Disease: Practical Recommendations for Diagnosis and Treatment
Self-administered version of the Fabry-associated pain questionnaire for adult patients
Information for patients

What is Fabry disease?

European Reference Networks (ERNs)

European Reference Networks (ERNs)
ERNs are networks for clinicians and researchers to share expertise, knowledge and resources, this information may be of use to Australian health professionals and researchers.

For links to online portals that provide information on rare diseases including definitions, causes, treatments, and publications for patients, families and professionals in the field. Please see our conditions page.