GUARD Rare Disease Day Events 2021

SWAN Australia – Rare Disease Day – Share your story

We want to learn about your SWAN child’s rare disease. If you are comfortable sharing your story, we would love to hear from you. We are offering our SWAN members two different time slots to share their story with others. The first at 3:00 PM AEST and the second at 8:30 PM AEST both on Rare Disease Day – 28 February. Please click on the link to register for the afternoon session and for the evening session. We look forward to chatting with you soon.

For more information about the sessions, please email or telephone 0404 280 441.

GaRDN Rare Disease Day Photography Competition

We want you to capture what it’s like to live with rare disease, whether it’s you, your children or your family. Show us the beauty, show us some inspiration, share your struggles, anything goes.
Winners will be announced on Rare Disease Day, on Sunday 28 February 2021.
For further details and to submit your entry go to

GaRDN Rare Disease Day Kids Art Competition

We’d love to see your kids best self portrait!
We will be asking all participating kids to ‘be creative, be smart, be bold, be unique, be fun, and most
of all, be YOU!’
Winning designs will receive their artwork printed on a special tote bag or tea towel and these will be then sold around Australia for our national fundraising event!
All entries will be printed together and sold as a special Many, Strong, Proud Rare Disease Day bag or tea towel.
For further details or to enter please go to

Bridges Night Ride – Perth

This year, honorary life member of GaRDN, Andrew Bannister along with his cycling group will be doing the Bridges Night Ride. Andrew has nominated GaRDN as the charity who will benefit from the ride, with part of the registration fees being donated to allow GaRDN to keep all of their much needed services going.

GSNV – Rare Disease Day 2021

The GSNV event will be held virtually on Friday Feb 26th from 9:30am – 1:30 pm ⁠
This year the GSNV presents a series of conversations lead by our CEO Monica Ferrie and focuses on strengthening the capacity of the genetic, undiagnosed and rare disease communities (GUARD) to establish their ‘team’ for support, advocacy and awareness. ⁠
Join us as our conversation extends to share the knowledge and experience of Sean Murray, CEO and founder of Mito Foundation. Along with Megan Donnell, CEO of The Childhood Dementia Initaitive, our key note speakers share motivation to drive impact in the mito community.⁠
The GSNV is charged with building and supporting a string sector and support network fro all people living with rare undiagnosed and genetic conditions and all those who support them.⁠
Join us for this important event as we discuss how we are building our team to support you to build yours ⁠
Register at⁠