Australian Autologous Haematopoietic Stem Cell Transplant Multiple Sclerosis Registry
Autologous Haematopoietic Stem Cell Transplant (AHSCT) is an immunosuppressive chemotherapy treatment combined with reinfusion of blood stem cells to help re-build the immune system. It has been used to treat a small percentage of people with multiple sclerosis (MS) in Australia and internationally. However, more data on the long-term outcomes of this treatment and its most appropriate use for people with MS is still required.
To help contribute to the international efforts to increase our understanding of this treatment, MS Research Australia established the Australian MS AHSCT Registry in 2011. MS Research Australia (with funding support from the MS Society of Western Australia), is coordinating and funding the Registry which is overseen by a steering committee of Australian haematologists and neurologists. The Registry aims to gather data and monitor the outcomes of Australians treated with AHSCT for MS.
This important Registry will add to the data being gathered worldwide on treatment effects, patient characteristics and outcomes, and long-term prognosis of patients following AHSCT. Together with the international evidence, the Registry aims to increase understanding of the role AHSCT may play as part of the range of treatments available for MS, and under which circumstances it is most appropriately used.
The collection and analysis of new patient data are still ongoing, as well as collection of longer-term follow-up of people who have already undergone AHSCT.
|Adding New Patients to Registry
The Registry is collecting detailed treatment information and clinical characteristics of people who have undergone AHSCT. This information must be provided, with the consent of the patient, by the treating neurologist and by the haematologist who oversaw the AHSCT procedure.
Anyone who has received, or is planning to receive, AHSCT for MS either in Australia or overseas, contact firstname.lastname@example.org to have your clinical data included in the AHSCT Registry.
|Please see the website for more information