Australian Bleeding Disorders Registry
| Information | The Australian Bleeding Disorders Registry (ABDR) is a registry for patients in Australia with bleeding disorders. It is used on a daily basis by clinicians in all Australian haemophilia treatment centres to assist in managing the treatment of people with bleeding disorders and to gain a better understanding of the incidence and prevalence of bleeding disorders. This information will also be used to understand demand for, and to facilitate ordering of, clotting factor product. |
| Registry Location | Australia |
| Registry Participation | Voluntary |
| Registry Contact | ABDR is managed in collaboration with the Australian Haemophilia Centre Directors’ Organisation (AHCDO), Haemophilia Foundation Australia and all Australian governments and is overseen by a Steering Committee, chaired by Dr John Rowell from the Queensland Haemophilia Centre. |
| Adding New Patients to Registry | Doctors need to register their patients by completing one of the ABDR Patient Registration Forms found on the website. ABDR Patient Registration Form (pdf) (354.92 KB) ABDR Patient Registration Form (docx) (56.2 KB) |
| Please see the website for more information |