Australian Genetic Heart Disease Registry
The aims of the Australian Genetic Heart Disease Registry are:
For information about what conditions are included and who is eligible to enrol, please see www.heartregistry.org.au
Registry National Coordinator – Dr Jodie Ingles
|Adding New Patients to Registry||
To participate in the Australian Genetic Heart Disease Registry, you will need to fill in a simple information sheet and sign a consent form, which gives the Registry researchers access to your medical records. Email the Registry Coordinator to have an enrolment pack mailed to you.
If you would like to enrol a patient, please contact the Registry Coordinator for the Online Registration link or to arrange enrolment packs to be mailed to you.
Registry enrolment requires informed and voluntary consent by the individual, and Registry consent forms for children and adults are provided. Upon receiving signed consent, we contact the treating cardiologist for clinical information relating to this patient.
|Please see the website for more information|