Australian National Duchenne Muscular Dystrophy Registry
Information | The Australian Duchenne Muscular Dystrophy Registry is linked directly to the TREAT-NMD global network of registries, an international effort which has proven effective in improving the health and management of boys with DMD. The Registry provides an important enabling tool for clinicians and clinical trial sponsors to quickly identify patients suitable for each study, particularly those therapeutic strategies that target specific genetic defects. Potential Benefits of a DMD Registry
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Registry Location | Australia |
Registry Participation | Voluntary |
Registry Contact | Robin Forbes Co-ordinator Australian Neuromuscular Disease Registry P: +61 3 9936 6740
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Adding New Patients to Registry | The database is open to anyone affected by DMD and is entirely voluntary – data obtained is held securely and confidentially. Clinical and genetic information about each patient will be entered by Registry staff Details on how to register can be found on the website |
Please see the website for more information |