Down Syndrome-Connect Registry
Down Syndrome-Connect (DS-Connect®) is for people living with a diagnosis of Down Syndrome (DS), including people with mosaic DS and partial trisomy 21. All of the health data collected by DS-Connect® are related to the health issues of people with DS. By collecting information about people with DS, the Registry may be a catalyst for research that benefits people with DS.
A registry can:
|Registry Location||International - available to Australians|
Registry coordinator: DSConnect@mail.nih.gov or email@example.com
Principal Investigator, Dr. Melissa A. Parisi: firstname.lastname@example.org
|Adding New Patients to Registry||
The registry is open to a family member of a person with DS or an individual with DS irrespective of country of residence.
Details on how to participate in the registry can be found here on our website.
|Please see the website for more information|