GenomeConnect: The ClinGen Patient Registry
Information | GenomeConnect is a patient portal, or registry, that is working to build the knowledge base about genetics and health that will allow researchers and doctors to study the impact of genetic variation on health conditions. This knowledge is key to the development of new treatments and therapies. Purpose
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Registry Location | International - available to Australians |
Registry Participation | Voluntary |
Registry Contact | If you have questions about your participation in the registry, please contact us: GenomeConnect |
Adding New Patients to Registry | How Can I Participate? Eligibility Criteria |
Please see the website for more information | Interested individuals can learn more here: www.clinicalgenome.org/share-your-data/patients |