NSW and ACT Hereditary Cancer Registry


The NSW and ACT Hereditary Cancer Registry (HCR) aims to assist people from families with a high risk of hereditary cancer to understand and manage their risk.

The HCR includes data for people at risk of hereditary cancer syndromes, including:

  • Familial adenomatous polyposis (FAP)
  • Lynch syndrome (previously known as HNPCC)
  • Peutz-Jeghers syndrome (PJS)
  • MUTYH-associated polyposis (MAP)
  • Juvenile polyposis (JP)
  • Serrated polyposis syndrome (SPS, formerly known as hyperplastic polyposis)
  • Mixed polyposis
  • PTEN hamartoma syndrome
  • CHEK2-associated syndrome
  • Other familial bowel cancer conditions where the underlying genetic cause is unknown


Find out more about hereditary cancers.

Registry Location Australia - NSW and ACT
Registry Participation Voluntary
Registry Contact

All questions relating to this dataset should be directed to:

E: HCR@cancerinstitute.org.au
T: 02 8374 3698 or 1800 505 644
F: 02 8374 3644

Adding New Patients to Registry

People from high-risk families are encouraged to register with the HCR to take advantage of our information, screening expertise and other services. Registration can be completed using the registration form (PDF) provided by your doctor or genetic counsellor or contact the HCR for more information.

Please see the website for more information