National Familial Hypercholesterolemia Registry


The National Familial Hypercholesterolemia (FH) Registry aims to get all FH patient records onto one database so that the information can be analysed to identify FH distribution, diagnosis and treatment effectiveness, cardiovascular disease levels and the impact of new treatments and interventions.

This will further the understanding of FH, aid health system planning and the development of the best treatment options and therefore improve patient care.

  • The National FH Registry will also provide equal opportunity to access the latest trials for new treatments for FH.
  • The National FH Registry will collect and process data according to Australian laws and best practices and ensure privacy of the data.
  • Once diagnosed with FH, patients including those who tested negative will be contacted to see if they wish to join the National FH Registry.
Registry Location Australian
Registry Participation Voluntary
Registry Contact

For more information on the National Familial Hypercholesterolaemia Registry, please contact

Adding New Patients to Registry

Joining the National FH Registry is simple

Please see the website for more information