National Familial Hypercholesterolemia Registry

Information	The National Familial Hypercholesterolemia (FH) Registry aims to get all FH patient records onto one database so that the information can be analysed to identify FH distribution, diagnosis and treatment effectiveness, cardiovascular disease levels and the impact of new treatments and interventions. This will further the understanding of FH, aid health system planning and the development of the best treatment options and therefore improve patient care. The National FH Registry will also provide equal opportunity to access the latest trials for new treatments for FH. The National FH Registry will collect and process data according to Australian laws and best practices and ensure privacy of the data. Once diagnosed with FH, patients including those who tested negative will be contacted to see if they wish to join the National FH Registry.
Registry Location	Australian
Registry Participation	Voluntary
Registry Contact	For more information on the National Familial Hypercholesterolaemia Registry, please contact fhwa@health.wa.gov.au
Adding New Patients to Registry	Joining the National FH Registry is simple Ask your FH doctor or Genetic Counsellor Visit the Registry website: www.athero.org.au/patients/fh-registry Contact the FH Registry coordinator NSW email: RPAHGene.Clinic@sswahs.nsw.gov.au elsewhere in Australia or general enquiries email: fhwa@health.wa.gov.au
Please see the website for more information	fhregistry-international.com athero.org.au/fh/patients/fh-registry