Registry of Kidney Diseases

The Registry of Kidney Diseases (ROKD) is a clinical quality registry which collects data from patients with Chronic Kidney Disease (CKD) across a spectrum of renal specific diseases (RSDs). The primary objective of the ROKD is to identify patients at earlier stages of CKD, monitor the course of their disease progression, and assess the quality of care provided to these patients in their medical management.

The registry aims to:

• Collect epidemiologically sound and consistent data across Australia to:
  • increase the accuracy of estimates of specific renal disease incidence and prevalence
  • increase the accuracy of estimates of chronic kidney disease (CKD) incidence and prevalence
  • improve understanding of the phenotypic expression and natural history of disease
  • identify factors that predict prognosis and outcomes, particularly in relation to progression to end stage kidney disease (ESKD) (dialysis/transplantation), cardiovascular events or death
  • assess current patterns of care and clinical practice
  • improve evidence for best practice-based guidelines for patient management
  • reduce variation in treatment and improve outcomes as a result of better implementation of evidence-based guidelines
• Facilitate awareness and promotion of clinical trials nationally, and potentially facilitate identification and recruitment of eligible volunteers to relevant clinical trials
• Enable research by providing aggregate, de-identified data to research entities
• Promulgate new knowledge to inform best practice and care services

Contact Us
If you would like to know more about the Registry of Kidney Diseases, please get in touch with a member of our research team:

T: 1800 811 326 (toll free)
E: sphpm-rokd@monash.edu

For Patients
The registry is what is called an “opt-out” registry, which means that the details of you (or your relative with chronic kidney disease (CKD) will automatically be included in the registry unless you inform us that you (or your relative) do not wish to participate.

Site participation

Benefits of participation – the aim of the Registry of Kidney Diseases (ROKD) is to improve the quality of care provided to people diagnosed with chronic kidney disease (CKD). Information from the registry will be used to monitor care provided, including treatment, complications and outcomes of care. The registry will help doctors and nurses to provide best possible care to CKD patients and also to identify any gaps that exist in service provision.

Please contact a member of our research team for further information.

rokd.org.au