Thrombotic Thrombocytopenia Purpura Registry
Currently there is no consensus regarding the incidence of Thrombotic Thrombocytopenia Purpura (TTP) in Australia, its optimal management, clinical outcome, or the impact of complications, nor standardisation of laboratory assessments. Lack of data hampers the design of clinical interventional studies and laboratory testing.
The TTP Registry recruits patients through treating clinicians at multiple sites across Australia, collects data via a specifically designed web-based data collection form and aims to:
|Registry Location||Australia and New Zealand|
TTP Project Officer
T: 1800 811 326
|Adding New Patients to Registry||
The TTP Registry collects information from hospitals, clinical registries, and medical or health-related databases from Australia and New Zealand about patients who are being treated for TTP and other Thrombotic Microangiopathies (TMAs).
Please contact us for further information.
|Please see the website for more information||
Transfusion Research Unit – Current research registries