Victorian Lung Cancer Registry

The Victorian Lung Cancer Registry (VLCR) aims to record all newly diagnosed lung cancer cases in participating sites in Victoria. Information from the registry will be used to monitor care provided, including treatment, complications and both short and longer term outcomes of care. This information will be used to help identify trends and whether gaps exist in service provision.

Aims

The main aim of the VLCR is to monitor the patterns of care and outcomes of individuals diagnosed with lung cancer in contributing Victorian public and private hospitals. The Registry provides population-based information on the patterns of care for people diagnosed with lung cancer and assesses whether there is variation in health-related quality of life and survival following diagnosis of lung cancer across Victoria.

Clinical registries such as the VLCR are valued tools for quality improvement. They improve care by arming doctors and teams treating lung cancer with information about how their outcomes benchmark with standards and other clinical outcomes, both locally and (sometimes) internationally. Registries identify variation in patterns and processes of care and outcomes and factors that influence adverse outcomes. Registries also provide a valuable tool to track how innovations in the science translate into longer term outcomes in the ‘real world’.

T: +61 3 9903 0555

E: med-vlcr@monash.edu

Clinician and Institution Participation – Enrolment:

• Only clinicians working within contributing hospitals are eligible to enrol in the Registry. While enrolment is voluntary, it is important that the Registry collects information from close to, if not all, the eligible population. The Registry would serve limited purpose if it did not collect representative data from both patients and clinicians.
• Clinicians are informed about the Registry via information sessions held at multi-disciplinary team meetings held at participating hospitals. Following this, clinicians are given the option to sign a letter of consent, authorising Registry staff to send patients a Patient Explanatory Statement, inviting participation in the Registry. Clinician consent also enables Registry staff to collect the treatment details of consenting Registry patients.

vlcr.registry.org.au